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Campaign to get Lily walking Tasmania News
Because of her chromosomal disorder, 22monthold Lily is only able to sit and play for short periods. She is unable to walk, crawl or roll over without help.
Parents Amy Males and Tim Parremore have been told Lily has the brain capacity of an eight or ninemonthold child. She was not diagnosed with PKS until she was about three weeks old.
One of the hardest things is not knowing what to expect. Some children with the same thing learn to walk, some dont. You cant predict it, Ms Males said.
The Royal Hobart Hospital have been great but in her short life Lily has had four different paediatricians which makes it difficult especially as what she has is so rare.
There have been countless paediatrician visits. She has regular EEG brain activity scans because of seizures.
The young family is being helped by family friends who have set up a Facebook page Luv 4 Lily and are running a charity auction to raise funds for Lilys walker.
We are grateful for the generosity of many local businesses and people. We also sold some fund raising chocolates to purchase a second skin to help her development, Ms Males said.